Support
April 28th, 2008Confronting your personal cancer risk can be confusing and frustrating. If you are a cancer pre-vivor trying to choose the best risk-management option, sometimes it helps to speak with other women who have faced these choices. Learn more about talking with other high-risk women in our website’s FORCE Community section or visit the following sections of the FORCE website to find more support resources specifically for pre-vivors:
* support through FORCE
o toll-free helpline
o message board
o chat room (special pre-vivor chats are held on Monday evenings at 10 pm EST)
o young pre-vivors discussion list (for pre-vivors age 30 or under)
* support groups specific to hereditary breast and ovarian cancer
* other support sites with sections on hereditary cancer risk
o Breastcancer.org
Has a section on their message board devoted to high-risk women.
o Hereditary Breast and Ovarian Cancer Society of Alberta
Has face-to-face support groups and events.
o Hyster Sisters
Has a section on their message board devoted to cancer concerns.
o Sharsheret
Link program will provide phone support for Jewish women at high risk for cancer.
o Young Survival Coalition
Has portion of their message board devoted to genetics and breast cancer.
Breast cancer support
Confronting a breast cancer diagnosis can be frightening. Sometimes it helps to speak with other people who are also going through breast cancer diagnosis or treatment. In addition to the following resources, you should contact your local hospitals, American Cancer Society, or religious organizations to see if they offer in-person cancer support groups.
* support through FORCE
o toll-free helpline
o message board
o chat room
* support groups specific to hereditary breast and ovarian cancer
* other breast cancer support resources and websites
o Association of Cancer Online Resources (ACOR)
Sponsors listservs for many cancer sites, including a male breast cancer discussion list.
o Breastcancer.org
Has an active support message board for women diagnosed with breast cancer.
o Sharsheret
Links young Jewish women in their fight against breast cancer.
o Y-Me
Offers a 24-hour support hot-line for those diagnosed with breast cancer.
o Young Survival Coalition
Offers online message board for women diagnosed with breast cancer at age 40 and under.
Ovarian cancer support
Confronting an ovarian cancer diagnosis can be frightening. Sometimes it helps to speak with other people who are also going through breast cancer diagnosis or treatment. In addition to the following resources, you should contact your local hospitals, American Cancer Society, or religious organizations to see if they offer in-person cancer support groups.
* support through FORCE
o toll-free helpline
o message board
o chat room
* support groups specific to hereditary breast and ovarian cancer
* other ovarian cancer support resources and websites
o Association of Cancer Online Resources (ACOR)
Sponsors listservs for many cancer sites, including a very active ovarian cancer list.
o Hyster Sisters
Has an online message board for women facing hysterectomy or gynecologic surgery.
o National Ovarian Cancer Coalition
Has a support forum for women diagnosed with ovarian cancer.
o Ovca.net
An active online community for women affected by ovarian cancer.
Support for other types of cancer
Colon Cancer Alliance
Operates a toll-free helpline, discussion list, chat and a Buddy Program for people affected by colon cancer.
Pancreatic Cancer Action Network (PanCan)
Has a links to online, telephone and in person pancreatic support groups.
Us Too
Provides support for men affected prostate cancer.
General cancer support
American Cancer Society
Offers support for all cancer types.
Association of Cancer Online Resources (ACOR)
Sponsors listservs for many types of cancer.
Cancercare
Offers support for individuals with cancer, their families and their caretakers.
Gilda’s Club
Has support programs for individuals and families affected by any cancer type.
The Wellness Community
Offers online support for people affected by any cancer type.
Hereditary disease support
Genetic Alliance
A nonprofit organization devoted to families affected by hereditary diseases. They maintain a list of organizations and support groups for hereditary diseases on their website.
National Organization for Rare Disorders
A nonprofit organization devoted to families affected by rare diseases. They maintain a list of organizations and support groups on their website.