Joining FORCEs, the quarterly FORCE newsletter, includes articles about research, finding quality health care and genetic discrimination. Volume 1, Issue 2–Fall 2005 features an update on the Genetic Information Nondiscrimination Act and an article on genetic counseling and testing in African Americans.
Genetic information can refer to family history of a disease or a genetic test result. Genetic discrimination occurs when a person is treated differently because he or she has an inherited disorder or is at risk to develop an inherited disorder. Most concerns about genetic discrimination relate to discrimination by health insurance companies and by employers. Read the rest of this entry »
The cost of genetic testing ranges from several hundred to several thousand dollars. Costs vary according to factors including:
Research is the best way for the medical community to discover better methods to detect, prevent, or treat diseases such as cancer, or to improve quality of life. These discoveries are made through careful study of different medical options to determine benefits, limitations, and risks compared with current standard care. Participating in research allows people to contribute to medical knowledge and offers the opportunity to receive cutting-edge care. Participation in research is not without risk; and, in order to receive funding, researchers must follow stringent guidelines to assure all participants are aware of the risks and their rights prior to participating in research. The guidelines require “informed consent,” which explains the following to Read the rest of this entry »
Overview
Our knowledge of hereditary cancer genetics is rapidly advancing, as new information is being discovered at an accelerated pace. Consulting with an expert who is knowledgeable in cancer genetics is the best way to ensure information received is up-to-date and credible. Read the rest of this entry »